When I read that reading helps stave off loneliness in the newsletter for Today’s Caregiver, I was thrilled — partly because I love to read and partly because I’m a writer and publisher. Reading, according to Emily Dickinson, who knew something about spending a lot of time on her own, is like a frigate that ‘takes us worlds away.’ Books (paper, hardcover, electronic in which you can enlarge the print if need be) let us travel even if we can’t get out of the house, or the armchair, or the bed. It takes our minds to different places, lets us vicariously experience other lives, and keeps those ol’ synapses firing in ways that keep what could be a shut-in life an intellectually opened mind.
Sue’s and my book, OK Now What? A Caregiver’s Guide to What Matters (Head to Wind Publishing) is not like a novel, but it does have in it, along with the kind of practical, experience-based advice and tips that non-professional caregivers can use every day (and many desperately need), the stories of other caregivers and caregiving situations. Encouraging, sometimes poignant, sometimes enlightening stories. We all live on stories, whether they are the ones we tell ourselves about our own life, or those we listen to and learn from. Stories matter in all walks of life. Read more from Caregiver.com through the link below.
We all have the guilt producing shoulda/coulda’s from time to time, but caregivers usually have the coulda/shoulda’s on a nearly daily basis. Yet as caregivers we often forget that we too have legitimate and important needs.That fact is only really apparent when our own health suffers in the course of caregiving. Even then, sometimes, we still feel guilt over not giving our ALL! If stress is too great and especially if our own health is suffering, we need to step back, take a more realistic view of what we have been doing and call in the reserves to help — and to make changes, even if they’re difficult. The article ( link below) on caregiver guilt in Today’s Caregiver, which awarded the 2016 Friendly Caregiver Award to our book, OK Now What? A Caregiver’s Guide to What Matters, illustrates the point, and reiterates our suggestions for beating the guilt trip we often reserve for ourselves..
When my father, who had a brain tumor and who was fiercely independent, slowly grew to be unreliable in the handling of his bills, etc., I worried about trying to strong-arm him into letting go of their management. A friend said to me, in a reference to the biblical ‘Honor the father and thy mother,’ etc.: “You ARE honoring him by taking care of things, even if he doesn’t understand that at this point. It helped a lot. And, he allowed me to do that after a little negotiation, which relieved us both.
For the adult children of a parent with Alzheimer’s who needs in-home care, there are tricks to it. Gary Barg, Editor-in-Chief of Today’s Caregiver magazine, offers a great example of how to help a loved one who has been highly functioning but who now needs help, accept that help. How you characterize it matters!
People who are not in a caregiving situation, especially those who have never (or more likely not yet) experienced it, want to be sympathetic, want to help. But while you can accept their sympathy, even their help, there is nothing like talking with, being with, and sharing stories and tips with those who are currently in the same boat. Those people who are actively caregiving. Their situations may be slightly different from yours — their loved one has terminal cancer; yours is dealing with advanced Parkinsons disease, for example, or yours has Alzheimer’s while theirs has vascular dementia — they are in the trenches along with you. Seeking out those in similar current situations lets you know in a way that nothing else does: You are not alone!
The article (link below) details how caregivers can help support each other.
It’s sometimes very difficult to step back into a family when you’ve purposely separated yourself from them. When aging parents need help caring for themselves, but the relationship with them has been fraught and you or your siblings face making decisions when what you really want to do is hide from the whole thing to protect yourself, you have a few choices. OK Now What? A Caregiver’s Guide to What Matters (Head to Wind Publishing) offers succinct, practical suggestions for approaching this dilemma. The article ( link below) in caregiver.com offers much the same approach — helpful and practical without sidestepping the difficulties. It’s never easy, but remember: you’re not alone.
See the eight practical guidelines offered in the article.
Our book, OK Now What? A Caregiver’s Guide to What Matters (Head to Wind Publishing, 2014) details the Paperwork and Practicalities a caregiver needs to address when acting on behalf of a loved one. Considering all the ramifications and specific legal needs of a person who is unable to care for themselves is difficult, but necessary. Making sure you are legally able to act on behalf of the person takes thought, care, and proper paperwork. The article in Caregiver.com offers points to consider.
Gary Barq’s memory of his Hungarian grandfather, who worked as a painting contractor in his own business until 80. When Gary’s grandfather developed Alzheimer’s the family who adored him, figured out a way to take care of him without destroying his dignity or their lives. It’s a touching story and one worth reading. “Ok, We Go Now” – Caregiver.com
You can get copies of OK Now What? A Caregiver’s Guide to What Matters (Head to Wind Publishing) through caregiver.com or through amazon.com.